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health unlocked btn-search facebook twitter essential thrombocythaemia polycythaemia vera myelofibrosis about us our mission blog detail news videos youtube videos newsletters how your money helps epidemiology study about mpns questions about mpns what do blood counts mean? what are mpns? what causes mpns? essential thrombocythaemia myelofibrosis polycythaemia vera a-z of terminology treatments treatment leaflets anagrelide integrative treatment aspirin cytarabine hydroxycarbamide interferon alpha melphalan, busulfan and p32 ruxolitinib thalidomide venesection (phlebotomy) bone marrow transplant additional treatments trials & research going on a trial current uk mpn trials guy's hospital mpn clinical trials portfolio supported trials mosaicc vorinostat phase ii study results cmml (chronic myelomonocytic leukaemia) monocle study for health care professionals living with mpns real stories i am... treatment decisions talking to your doctor everyday challenges contraceptives and hrt preventing deep vein thrombosis coping with fatigue renewing intimacy coping with side effects if you need surgery itchy skin your state of mind what you may be feeling looking well but feeling awful communicating feelings coping long-term after a blood clot after a serious clot end-of-life hospice care reducing pain and symptoms ways to feel better complementary therapies reflexology & massage staying active eating well keeping track of symptoms reducing stress know the warning signs staying well mpns in pregnancy planning before pregnancy during pregnancy miscarriage practical advice cost of medication employment rights travel information planning for travel mpn id cards living abroad get involved get involved events patients' forums patients’ forum dublin 14 july 2018 patients’ forum belfast 8th september 2018 patients’ forum liverpool 28 september 2018 patients’ forum nottingham 4 october 2018 patients’ forum newcastle-upon-tyne 12 october 2018 patients’ forum london 23 november 2018 video of the patients’ forum held in london 24th july 2015 presentations from the living with mpns day 2013 presentations from the living with mpns day 2015 buddy programme join the programme donate fundraise design your own event fundraising heroes past fundraisers volunteer advocacy health unlocked contact us contact us join our mailing list submit a story login diagnosed with mpn? myeloproliferative neoplasms (mpns) are rare blood cancers that can be diagnosed at any age. read more making fundraising fun! how to raise money for and have a good time while you are at it read more join our buddy programme having a buddy who really understood what i was going through changed everything for me read more donate now about ’s mission is to provide clear and accurate information and emotional support to everyone who has been diagnosed with a myeloproliferative neoplasm (mpn) and their families/friends. has members across the uk and in many other countries throughout the world. we offer this website, patients’ forums around the uk during the year, and a peer support programme to allow people with mpns to contact others in similar circumstances. we also have an online forum at healthunlocked which is a supportive and informative online forum where you can ask questions about anything related to mpns, and get replies from people who really understand you - people living with a mpn. in addition we produce information leaflets and a newsletter for people with mpns so that patients are better informed and have more confidence dealing with the management of their condition. also raises money to fund research towards a cure and advocacy for patients. most of all we aim to offer hope to everyone who has a myeloproliferative neoplasm. our vision and desire is that one day there will be a cure and an answer to what causes mpn . please join or email us at [email protected] to learn more. your questions answered treatments research trials buddy programme join our mailing list why not tell us your story real stories i am... fundraisers alisia i am determined not to let my et limit... read more sally r i was lucky to be alive! read more louise s we have one life and we need to live... read more jon m worried that symptoms were a brain... read more sylvia r ‘do whatever you need to help me live... read more david l i have good days and bad days read more cecilia j i know i am very lucky read more janet w no side effects and good nhs care read more mai r trying to enjoy each day as it comes read more ange w relieved to learn i was not a hypochondriac! read more marley a shocked with initial diagnosis read more sharon l even as a nurse i did not recognize... read more emily b the diagnosis hung over the family... read more chris a occupational related mpn? read more sally p helps understanding of the... read more sally t unique can feel a lonely place. read more brenda b ovewhelming tiredness was a big problem read more gina my name is gina and i have et. i am... read more gloria you just have to live each day to the... read more steve b i’m going to live my life to the full... read more will will, a 62 year old self-employed architect... read more faye every day is a step beyond diagnosis. read more jane look how far we’ve come in 20 years read more liz h regret that et wasn’t diagnosed before... read more brian it was bad news but not that bad. read more pamela a different specialist gave hope for... read more adrian i will not allow an acquired genetic... read more helen a little knowledge was definitely dangerous! read more dick m work out what is best for you and carry... read more anthony s if given the opportunity i would go... read more jeffrey w no noticeable symptoms before diagnosis read more eric a in favour of assisted dying read more jennie b the highs and lows of living with a... read more annette m from years of jogging along quite nicely,... read more catherine o it has been great to have a buddy read more chris h to b(mt) or not to b(mt), that was... read more michelle r right now i have a life to live read more mark c diagnosis a complete fluke read more i am caring for someone there's nothing you can do to change... read more i am pregnant a coordinated care plan between your... read more i am looking to talk one of the biggest challenges some... read more i am looking for alternatives get the balance right. combine the... read more i am hoping for a cure it’s true that none of the current... read more i am feeling uncertain while many people take their illness... read more i am feeling strong some people with myeloproliferative... read more i am feeling confused knowing the lingo can help you find... read more i am feeling fatigued as patients with myeloproliferative... read more i am newly diagnosed it’s not uncommon to feel bewildered... read more i am under 24 myeloproliferative neoplasms (mpns)... read more i am looking for information about medication although there are currently no medications... read more helen bass virgin money london marathon 24th april... read more trevor buckley virgin money london marathon 24th april... read more samuel beevor virgin money london marathon 24th april... read more james white virgin money london marathon 24th april... read more ruby heath ruby's auntie rachael has essential... read more paddy miller the adidas silverstone half marathon... read more david brailsford david was diagnosed with et a few years... read more laura and peter abseiling challenge, june 2015 read more giovanni maso virgin money london marathon 26th april... read more gerry burns london bupa 10k read more kayleigh kayleigh aged 21 was heartbroken when... read more john messenger virgin money london marathon 26th april... read more sheena hawkin sheena hawkin’s 90 mile jurassic coastal... read more amanda lythe amanda, 33 and a mother of three children... read more karen adams karen adams took part in the shine... read more barbara coryn london bupa 10k 25th may 2015 re

URL analysis for mpdvoice.org.uk

http://www.mpnvoice.org.uk/get-involved/events/mpn-voice-patients-forum-dublin-14-july-2018
http://www.mpnvoice.org.uk/get-involved/fundraise/fundraising-heros/david-brailsford
http://www.mpnvoice.org.uk/living-with-mpns/everyday-challenges/renewing-intimacy.aspx
http://www.mpnvoice.org.uk/about-us/news/belfast-forum-new-date
http://www.mpnvoice.org.uk/living-with-mpns/ways-to-feel-better/keeping-track-of-symptoms.aspx
http://www.mpnvoice.org.uk/living-with-mpns/your-state-of-mind/communicating-feelings.aspx
http://www.mpnvoice.org.uk/living-with-mpns/everyday-challenges.aspx
http://www.mpnvoice.org.uk/about-mpns/trials-research/going-on-a-trial.aspx
http://www.mpnvoice.org.uk/living-with-mpns/i-am/i-am-hoping-for-a-cure
http://www.mpnvoice.org.uk/get-involved/fundraise/fundraising-heros/karen-adams
http://www.mpnvoice.org.uk/living-with-mpns/real-stories/will
http://www.mpnvoice.org.uk/living-with-mpns/i-am/i-am-caring-for-someone
http://www.mpnvoice.org.uk/living-with-mpns/real-stories/sally-r
http://www.mpnvoice.org.uk/living-with-mpns/real-stories/david-l
http://www.mpnvoice.org.uk/get-involved/fundraise/fundraising-heros/kayleigh

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Error for "mpdvoice.org.uk".

the WHOIS query quota for 2600:3c03:0000:0000:f03c:91ff:feae:779d has been exceeded
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WHOIS lookup made at 17:00:06 12-Jul-2018

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Copyright Nominet UK 1996 - 2018.

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS mpdvoice.org.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME mpdvoice.org.uk

NSERVER

  NS3.DREAMHOST.COM 66.33.205.230

  NS1.DREAMHOST.COM 64.90.62.230

  NS2.DREAMHOST.COM 208.97.182.10

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